Toddler with rare disease is making strides; parents grateful for respite care, therapy at CRCC
By Dan McCann / Special for Blue Cross and Blue Shield of Nebraska
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Two-year-old Giulia DiGiacomo, daughter of Dominic DiGiacomo and Dr. Megan Belfiore, has Wieacker-Wolff syndrome, a rare genetic disorder that presents a range of mobility challenges. She is one of only 56 diagnosed cases in the world, DiGiacomo says. The toddler is pictured with her dad at CRCC, formerly Children's Respite Care Center, where she goes two days a week.
JEFFREY BEBEE
Giulia and Dad, at CRCC. The toddler will turn 3 in December.
By Dan McCann / Special for Blue Cross and Blue Shield of Nebraska
Two-year-old Giulia DiGiacomo loves being around her two big sisters and playing in the front yard, but right now, she’s all about “Baby,” her aptly named baby doll.
Two-year-old Giulia DiGiacomo does physical therapy two days a week a CRCC, which is supported, in part, by grant funding from Blue Cross and Blue Shield of Nebraska.
Dominic DiGiacomo and his wife, Dr. Megan Belfiore, speak highly of the care daughter Giulia gets at CRCC, formerly Children's Respite Care Center. They especially like how special needs children and typically developing children play and learn together.
Nonprofit's pantries will switch to drive-thru service to keep necessities accessible to families.
Two-year-old Giulia DiGiacomo, daughter of Dominic DiGiacomo and Dr. Megan Belfiore, has Wieacker-Wolff syndrome, a rare genetic disorder that presents a range of mobility challenges. She is one of only 56 diagnosed cases in the world, DiGiacomo says. The toddler is pictured with her dad at CRCC, formerly Children's Respite Care Center, where she goes two days a week.
Two-year-old Giulia DiGiacomo does physical therapy two days a week a CRCC, which is supported, in part, by grant funding from Blue Cross and Blue Shield of Nebraska.
Dominic DiGiacomo and his wife, Dr. Megan Belfiore, speak highly of the care daughter Giulia gets at CRCC, formerly Children's Respite Care Center. They especially like how special needs children and typically developing children play and learn together.
